In brief
A Canadian qualitative study of 23 adults with diabetes found that inconsistent messaging from providers and workplaces, and patients' own tendency to psychologically distance themselves from their disease, both undermine diabetic foot disease prevention, pointing to a key nursing role in coordinated, consistent...
What this article is about
Quick Answer
A Canadian qualitative study of 23 adults with diabetes found that inconsistent messaging from providers and workplaces, and patients' own tendency to psychologically distance themselves from their disease, both undermine diabetic foot disease prevention, pointing to a key nursing role in coordinated, consistent education.
Student takeaways
Key Takeaways
- Reflexive thematic analysis of 23 interviews identified two main themes: 'Ineffective Coping: Distancing Self from Disease' and 'Vacillating Responsibility: Multiple Mixed Messages.'
- Participants often distanced themselves from their diabetes through disconnecting (avoiding foot checks when feeling well), predestined thinking (attributing disease to heredity), and personification (describing blood sugar as acting independently, e.g. 'my sugars creep up').
- Participants described receiving mixed messages from healthcare providers, including physicians who addressed foot problems reactively rather than emphasizing proactive prevention.
- Workplaces were described as treating diabetes as an 'invisible disease' by not accommodating time for meals, medication, or appropriate footwear.
- Participants reported ongoing uncertainty about which specific foot-care self-management steps they were supposed to follow.
Student summary
Why This Research Matters
People living with diabetes mellitus (DM) face a serious risk: diabetic foot disease (DFD). DFD can lead to ulcers, infections, hospital stays, limb amputation, and a lower quality of life. Preventing DFD is supposed to be a routine part of diabetes self-management, yet many people struggle to keep up with the daily foot-care tasks their care team recommends. This Canadian study, published in the Canadian Journal of Nursing Research by Audrey Walsh and Janet L. Kuhnke, asked a simple but important question: how do people actually manage the day-to-day work of protecting their feet from diabetes-related complications?
The researchers used a qualitative descriptive design, which is well suited to capturing real-world experiences in participants' own words rather than testing a specific hypothesis. They recruited 23 adults from small communities in an Eastern Canadian province (population 475 to 6,000) through posters placed in libraries, pharmacies, and senior centres. Participants ranged in age from 24 to 85 (mean age 56.5), included 13 women and 10 men, and had lived with diabetes anywhere from 13 months to 49 years. Six had type 1 diabetes, 12 had type 2, and 5 did not specify their type. Each person took part in a semi-structured, in-person interview lasting 40 to 60 minutes, which was recorded, transcribed, and analyzed using reflexive thematic analysis in NVivo software until the researchers reached data saturation, meaning new interviews stopped producing new insights.
Two major themes emerged from these conversations. The first, called Ineffective Coping: Distancing Self from Disease, describes how participants often mentally separated themselves from their diabetes to cope with its demands. This showed up in three ways: disconnecting, where people avoided foot checks or care when they felt fine, reasoning that they should not go looking for a problem; predestined thinking, where participants blamed genetics for their diabetes, telling themselves it runs in my family, which reduced their sense of personal responsibility for prevention; and personification, where people described their blood sugar as behaving on its own, saying things like my sugars creep up, as though the disease had a will separate from their own choices.
The second theme, Vacillating Responsibility: Multiple Mixed Messages, captures how participants received confusing and inconsistent signals from the people and systems around them about whose job it was to prevent DFD. Some described physicians who only addressed foot problems reactively, once something had already gone wrong, rather than emphasizing prevention up front. Others said their workplaces did not accommodate the practical needs of diabetes management, such as time for meals, medication, or properly fitted footwear, which the study describes as treating diabetes like an invisible disease. Many participants also expressed genuine uncertainty about exactly which foot-care steps they were supposed to follow, suggesting that the education they had received was incomplete or unclear.
Together, these themes suggest that DFD prevention is not simply a matter of individual willpower. It is shaped by how healthcare providers communicate, whether workplaces support self-management, and whether people are given consistent, clear guidance. The authors conclude that nurses are uniquely positioned to fill this gap: nurses can provide the ongoing education and support people need to carry out complex self-care routines, and they can also work to align the messages patients receive across different providers and settings.
For nursing students, this study is a reminder that patient education is not a one-time event delivered at diagnosis. Foot care for diabetes requires repeated, consistent reinforcement, and nurses should watch for signs that a patient is distancing themselves from their disease or receiving mixed signals from other sources. It also highlights that structural and workplace factors matter as much as individual motivation when it comes to whether people can realistically follow through on recommended self-care. Because this was a qualitative study with a relatively small, geographically limited, and largely homogeneous (22 of 23 participants were White) sample from small Eastern Canadian communities, the findings describe patterns worth exploring further rather than results that can be generalized to all people living with diabetes.
Source abstract
Study Overview
Background Individuals living with diabetes mellitus (DM) are at an increased risk for multiple serious health complications including diabetic foot disease (DFD). Daily, DFD contributes to increased morbidity, mortality, increased hospitalization, limb amputation, and reduced quality of life. Prevention of DFD is a foundational component of diabetes management. Purpose The purpose of this study was to explore how individuals manage the care required to protect their feet from DM related foot complications. Methods This qualitative descriptive study utilized semi structured interviews to explore the perspectives of 23 participants on preventing foot care complications associated with DM. All data were analyzed using reflexive thematic analysis. Results Participants were challenged to consistently make health choices that were congruent with recommended DM self-management for the prevention of DFD. In addition, participants intuited multiple mixed messages from healthcare providers and workplaces that appeared to diminish their individual responsibility to self-manage their DM. Findings were organized under two main themes: a) Ineffective coping: Distancing self from disease b) Vacillating responsibility: Multiple mixed messages. Conclusions Nurses are in a unique position to provide the education and support needed to assist individuals in carrying out the many recommended self-care strategies to reduce the risk of DFD. Contextually, nurses must encourage consistent messaging among health care providers and workplaces to prioritize the health needs of individuals living with diabetes and to support the challenging work these individuals must navigate every day. It will take a concerted effort to reinforce the message that diabetes care is a priority for everyone.
Evidence appraisal
Main Findings
- Reflexive thematic analysis of 23 interviews identified two main themes: 'Ineffective Coping: Distancing Self from Disease' and 'Vacillating Responsibility: Multiple Mixed Messages.'
- Participants often distanced themselves from their diabetes through disconnecting (avoiding foot checks when feeling well), predestined thinking (attributing disease to heredity), and personification (describing blood sugar as acting independently, e.g. 'my sugars creep up').
- Participants described receiving mixed messages from healthcare providers, including physicians who addressed foot problems reactively rather than emphasizing proactive prevention.
- Workplaces were described as treating diabetes as an 'invisible disease' by not accommodating time for meals, medication, or appropriate footwear.
- Participants reported ongoing uncertainty about which specific foot-care self-management steps they were supposed to follow.
Practice transfer
Clinical Relevance
- Nurses should recognize that avoidance of preventive foot checks when a patient feels well may reflect a coping strategy of distancing from the disease, not simple non-compliance, and should be addressed with tailored, non-judgmental education.
- Consistent, proactive foot-care education should be reinforced at every encounter rather than delivered only reactively once a problem has already developed.
- Nurses are positioned to identify and help resolve inconsistent messaging patients receive across different healthcare providers regarding diabetic foot self-management.
- Care teams should explicitly clarify foot-care techniques and expectations for patients, since participants reported genuine uncertainty about correct self-care steps despite receiving some education.
- Advocacy for workplace accommodations (time for medication, meals, and appropriate footwear) may be a relevant nursing role in supporting patients' ability to actually carry out recommended diabetes self-management.
Faculty notes
Educational Relevance
Walsh and Kuhnke's qualitative descriptive study, published in the Canadian Journal of Nursing Research, addresses a persistent clinical problem: despite clear guidelines, adherence to diabetic foot disease (DFD) prevention behaviours remains inconsistent, and DFD continues to drive morbidity, hospitalization, amputation, and reduced quality of life. Rather than measuring adherence quantitatively, the authors chose a qualitative descriptive approach with reflexive thematic analysis to surface how people experience and make sense of the daily work of foot self-protection, an approach well matched to a question about lived experience and meaning rather than prevalence or effect size.
The sample comprised 23 adults recruited via community posters (libraries, pharmacies, senior centres) in small communities (population 475-6,000) in an Eastern Canadian province. Ages ranged from 24 to 85 (mean 56.5); the sample included 13 women and 10 men; 6 participants had type 1 diabetes, 12 had type 2, and 5 did not specify type; disease duration ranged from 13 months to 49 years. Semi-structured interviews of 40-60 minutes were audio-recorded, transcribed, and coded in NVivo 11 using a constructivist reflexive thematic analysis approach, with recruitment continuing until data saturation was reached. This is a methodologically sound approach for the stated aim, though instructors should note the sample was 22 of 23 White participants from small, rural-adjacent communities, which substantially limits transferability to urban, ethnically diverse, or Indigenous-majority populations, and the authors acknowledge this limitation directly.
Two themes structure the findings. Ineffective Coping: Distancing Self from Disease describes three related mechanisms by which participants psychologically separated themselves from ongoing disease management: disconnecting (avoiding checks when asymptomatic), predestined thinking (attributing diabetes to heredity in ways that diminished perceived personal agency), and personification (describing glucose fluctuations as autonomous, e.g., 'my sugars creep up'). Vacillating Responsibility: Multiple Mixed Messages captures external, systemic contributors to inconsistent self-management: reactive rather than proactive care from physicians, workplace environments that functionally treated diabetes as an invisible disease by failing to accommodate meal timing, medication schedules, or appropriate footwear, and participant-reported uncertainty about correct foot-care techniques, suggesting gaps or inconsistencies in patient education.
For discussion, this study is useful for illustrating how thematic analysis moves from raw interview data to organizing themes and how a qualitative descriptive design differs from grounded theory or phenomenology in its lower level of interpretive abstraction. It also offers a strong prompt for examining the intersection of individual health behaviour and systemic/organizational determinants of health, a useful corrective to purely individual-blame framings of non-adherence. Faculty might pair this article with epidemiological Canadian data on DFD-related amputation (amputation rates in people with diabetes are substantially elevated relative to the general population, and the large majority of amputations are preceded by a foot ulcer) to contextualize why the stakes of inconsistent messaging are high.
Limitations meriting classroom discussion include the small, homogeneous, geographically concentrated sample; the qualitative design's inherent lack of generalizability; potential recruitment bias toward individuals motivated enough to respond to community posters; and the absence of provider or workplace perspectives, meaning the 'mixed messages' theme is described only from the patient's vantage point. The authors' clinical implication, that nurses are well positioned to provide consistent education and to coordinate messaging across providers and workplace settings, is a defensible extension of the findings and offers a concrete discussion point for students on interprofessional communication and care coordination in chronic disease management.
Critical appraisal
Limitations
- The sample was small (n=23) and drawn from a limited geographic area (small communities in one Eastern Canadian province), limiting generalizability.
- The sample was largely homogeneous in race (22 of 23 participants were White and 1 Indigenous), limiting transferability of findings to more ethnically diverse or Indigenous-majority populations.
- As a qualitative descriptive study, findings describe patterns of experience rather than establishing prevalence, causation, or measurable outcomes.
Classroom use
Discussion Questions
- How does the theme of 'distancing self from disease' change how you might approach patient education about diabetic foot care?
- Why might reflexive thematic analysis be a better fit for this research question than a quantitative survey design?
- What does the subtheme 'predestined' reveal about the role of health beliefs in chronic disease self-management?
- How might a nurse respond differently to a patient who describes their blood sugar as something that 'creeps up' on its own, compared to a patient who takes full ownership of glucose management?
- In what ways can nurses help reduce 'mixed messages' between physicians, other providers, and patients regarding DFD prevention?
- What workplace accommodations discussed in this study might a nurse realistically help advocate for on behalf of a patient with diabetes?
- Given the study's homogeneous sample, what additional research would you want to see before applying these themes broadly across diverse populations?
- How could the two themes identified in this study intersect, for example, could mixed messages from providers contribute to a patient's tendency to distance themselves from their disease?
- What role does health literacy or clarity of instruction play in resolving the 'uncertainty' subtheme described by participants?
- How might nurses in acute, community, and occupational health settings each apply the study's recommendation for consistent messaging differently?
Knowledge check
Quiz
1. What was the primary purpose of this study?
- To measure amputation rates among Canadians with diabetes
- To explore how individuals manage the care required to protect their feet from diabetes-related foot complications
- To test a new diabetic foot ulcer treatment protocol
- To compare nurse-led versus physician-led diabetic foot clinics
Rationale: The abstract states the purpose was 'to explore how individuals manage the care required to protect their feet from DM related foot complications.'
2. What research design and analysis method did this study use?
- Randomized controlled trial with statistical analysis
- Qualitative descriptive study using semi-structured interviews and reflexive thematic analysis
- Systematic review and meta-analysis
- Cross-sectional survey with descriptive statistics
Rationale: The abstract states: 'This qualitative descriptive study utilized semi structured interviews... All data were analyzed using reflexive thematic analysis.'
3. How many participants took part in this study?
- 13
- 23
- 33
- 56
Rationale: The abstract and full text state 23 participants were interviewed about preventing foot care complications associated with diabetes.
4. Which two main themes were identified in the findings?
- Effective Coping and Consistent Responsibility
- Ineffective Coping: Distancing Self from Disease, and Vacillating Responsibility: Multiple Mixed Messages
- Financial Barriers and Access to Care
- Medication Adherence and Wound Healing Time
Rationale: The abstract states findings were organized under two themes: 'a) Ineffective coping: Distancing self from disease b) Vacillating responsibility: Multiple mixed messages.'
5. What did participants mean when they described their blood sugar as something that 'creeps up' on its own?
- They were quoting their physician's exact diagnosis
- This reflects the subtheme of personification, where the disease was described as acting independently of the person
- They were describing a specific lab test result
- They were referring to a documented medication side effect
Rationale: The full-text extraction identifies personification as a subtheme in which participants used language like 'my sugars creep up,' suggesting the disease operates independently of the person.
6. According to the study, how did some physicians contribute to inconsistent foot-care messaging?
- By requiring participants to attend weekly foot exams
- By prioritizing reactive, problem-based intervention rather than proactive prevention education
- By refusing to treat any diabetes-related foot complications
- By providing identical foot-care instructions to every participant
Rationale: The full text describes the 'Reactive Care' subtheme, noting physicians prioritized problem-based interventions rather than prevention, with one quoted as saying to let them know only if a problem arose.
7. What did the study identify as a workplace-related barrier to diabetic foot self-management?
- Mandatory annual foot screenings
- Insufficient time for meals and medication, and footwear causing ingrown toenails
- Excessive paid sick leave for diabetes care
- Workplace-provided diabetic education programs
Rationale: The full-text extraction states workplace barriers included insufficient meal/medication time and footwear causing ingrown toenails, part of the 'Invisible Disease' subtheme.
8. According to the authors' conclusion, what unique role can nurses play regarding diabetic foot disease prevention?
- Nurses should focus solely on wound dressing after ulcers develop
- Nurses can provide education and support for self-care strategies and encourage consistent messaging among providers and workplaces
- Nurses should refer all foot-care education entirely to physicians
- Nurses have no distinct role compared to other healthcare providers
Rationale: The abstract states nurses 'are in a unique position to provide the education and support needed... and must encourage consistent messaging among health care providers and workplaces.'
9. What is a key limitation of this study's sample?
- It included only participants under age 30
- It was small, drawn from small communities in one Eastern Canadian province, and largely homogeneous in race
- It included no participants with type 2 diabetes
- It was conducted entirely through anonymous online surveys
Rationale: The full-text extraction lists limitations including a homogeneous sample from Eastern Canada and a relatively small sample size (N=23) from small communities.
10. What does the 'predestined' subtheme describe?
- Participants' belief that a cure for diabetes was imminent
- Participants attributing their diabetes to heredity in ways that reduced their sense of personal responsibility for prevention
- A structured care pathway assigned by physicians
- A workplace policy for accommodating diabetes
Rationale: The full-text extraction describes 'Predestined' as fatalistic beliefs (e.g., 'it runs in my family') that reduced personal responsibility, part of the Ineffective Coping theme.
Study cards
Flashcards
What is diabetic foot disease (DFD)?
A serious complication of diabetes mellitus that increases the risk of morbidity, mortality, hospitalization, limb amputation, and reduced quality of life.
What was the purpose of this study?
To explore how individuals living with diabetes manage the care required to protect their feet from diabetes-related foot complications.
What research design did the authors use?
A qualitative descriptive study using semi-structured interviews.
What analysis method was used on the interview data?
Reflexive thematic analysis, conducted using NVivo 11 software.
How many participants were interviewed for this study?
23 participants.
What was the age range and mean age of participants?
Ages ranged from 24 to 85, with a mean age of 56.5 years.
What was the sex distribution of participants?
13 females and 10 males.
What types of diabetes did participants have?
6 had type 1 diabetes, 12 had type 2 diabetes, and 5 did not specify their type.
Where were participants recruited from?
Small communities (population 475-6,000) in an Eastern Canadian province, via posters in libraries, pharmacies, and senior centres.
What was the first main theme identified in the study?
Ineffective Coping: Distancing Self from Disease.
What is the 'disconnecting' subtheme?
Participants avoided preventive foot assessments or care when they felt well, reasoning they shouldn't 'go looking for a problem.'
What is the 'personification' subtheme?
Participants described their blood sugar as acting on its own, using phrases like 'my sugars creep up,' suggesting the disease operates independently of the person.
What was the second main theme identified in the study?
Vacillating Responsibility: Multiple Mixed Messages.
What is the 'reactive care' subtheme?
Physicians prioritized addressing foot problems only after they occurred, rather than emphasizing proactive prevention.
What is the 'invisible disease' subtheme?
Workplaces failed to accommodate participants' diabetes management needs, such as time for meals, medication, and appropriate footwear.
What is the 'uncertainty' subtheme?
Participants expressed confusion about the correct foot-care techniques they were supposed to follow.
What did the authors conclude about the role of nurses?
Nurses are uniquely positioned to provide education and support for self-care strategies and to encourage consistent messaging among providers and workplaces.
What is a key limitation of this study?
The sample was small, geographically limited to one Eastern Canadian province, and largely homogeneous in race (22 of 23 participants were White).
Why is a qualitative descriptive design well suited to this research question?
It captures participants' lived experiences and perspectives in their own words, which is appropriate for exploring how people understand and manage a complex self-care behaviour.
How long did the interviews last, and how were they analyzed?
Interviews lasted 40-60 minutes, were recorded and transcribed, and analyzed with reflexive thematic analysis until data saturation was reached.
Search-ready answers
Frequently asked questions
What is diabetic foot disease and why does it matter for nursing care?
Diabetic foot disease (DFD) is a complication of diabetes that can lead to ulcers, infection, hospitalization, amputation, and reduced quality of life. This study found that preventing it depends heavily on consistent nurse-led education and support, since many patients struggle to consistently apply recommended self-care.
How many people were studied in this research on diabetic foot disease prevention?
The study interviewed 23 adults living with diabetes, recruited from small communities in an Eastern Canadian province.
What are the two main themes found in this diabetic foot disease study?
The two themes were 'Ineffective Coping: Distancing Self from Disease' and 'Vacillating Responsibility: Multiple Mixed Messages.'
Why do some people with diabetes avoid checking their feet regularly?
The study found a subtheme called 'disconnecting,' where participants avoided foot checks when they felt well, reasoning that they shouldn't go looking for a problem if nothing seemed wrong.
What role do healthcare providers play in inconsistent diabetic foot care messaging?
The study found some physicians focused on reactive care, addressing foot problems only after they occurred, rather than consistently emphasizing prevention, which contributed to participants receiving mixed messages.
Can workplaces affect a person's ability to manage diabetic foot care?
Yes. Participants described workplaces that did not accommodate time for meals, medication, or appropriate footwear, effectively treating diabetes as an 'invisible disease.'
What research method was used to analyze the interviews in this study?
The researchers used reflexive thematic analysis, a qualitative method for identifying patterns of meaning across interview transcripts, supported by NVivo 11 software.
What do the study's authors say nurses should do to help prevent diabetic foot disease?
The authors conclude that nurses are well positioned to provide ongoing education and support for self-care strategies, and to help ensure consistent messaging about foot care across different providers and workplace settings.
What are the limitations of this study on diabetic foot disease prevention?
The study had a small sample (23 people), was geographically limited to small communities in one Eastern Canadian province, and was racially homogeneous (22 of 23 participants were White), which limits how broadly the findings can be applied.
Where was this study published and who conducted it?
The study, 'Prioritizing the Prevention of Diabetic Foot Disease: We Each Have a Role to Play,' was conducted by Audrey Walsh and Janet L. Kuhnke and published in the Canadian Journal of Nursing Research.